Let’s normalise Rareness Awareness with Rare Diseases South Africa
Just like rare cars, jewellery, talents and skills, people with rare diseases should be celebrated. Some of the world’s rarest dolphins, birds, flowers, minerals and diamonds are protected and loved across the globe, what about each incredible person?
Following one of the most challenging years of the 21st century, it’s time to rethink and redesign the global ‘post covid’ story.
From sad to inspiring
From the inability to ability
From fear to hope
From the unknown to positive
Tell your story!
Rare Diseases South Africa is redefining what it means to be rare. Because we all are!
If you’ve been impacted by a family member, friend or acquaintance who’s been diagnosed with a rare disease or otherwise, tell us your story! We want to hear what positive impact rare individuals have on the people around them, and how rareness has impacted their lives in a good way.
Everybody has something they can do that others can not - be it to wiggle their ears or do the splits for example. This is the foundation of the viral rare video campaign.
Everything can’t be doom and gloom all the time. Let’s empower and raise awareness for rareness!
[#ShareyourRare on social channels]
Let’s flip the script
Allow your rareness to shine! Using the power of social media, put your rareness out there and help Rare Diseases South Africa generate awareness for rareness. Rareness isn’t weird or odd, it’s beautiful and we need to celebrate it.
Starting in January 2021, let’s tell our rare stories, invite friends and fam to join and empower people living with rare diseases. All of this, leading up to Rare Diseases week in February 2021.
Rare Warriors Assemble!
Rare Warriors (individual or parents) [Tell your story]
Rare activists [Get involved]
Influencers and Rare Makers [Share Awareness]
Rare Corporates [Leverage resources]
Media partners [Share the Stories]
Everyone’s got rareness to share. Tell your story. Utilise the power of social media and educate followers, friends and family about what it’s like to be rare.
[Download our Press Pack]
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